Submissions are being accepted for APFED Calendar!
Please include name and age of contributor with each submission.
Pictures of you and or your family. Must be high resolutions photos.
Drawings Must be no bigger than 8 x 11 and able to scan. Subject: How does EGID make you feel?
Quotes that you live by.
Poems that you have written.
Favorite song.
Favorite thing to do.
What do you want to be when you grow up?
If you could send a message to everyone in the world what would you say?
What or who gives you strength to help you live with your Eos disease everyday?
If you could ask one question to anyone in the world what would you ask?
(What is the proudest moment of your life?
(If you had one opportunity to teach a person about your disease what would you tell them first?
Please submit contributions to tobie@ejartworks.com. An Email confirmation will be sent upon receipt of
submission. If no confirmation is received, please re-submit. OR mail to: Tobie Miller, P.O. Box 365 Balsam Lake, WI 54810, Phone: 612-801-5998. Please provide a postage paid envelope if you would like your submission returned. Other suggestions will be consideration. Feel free to contact Tobie anytime with questions.
For those of you who decide to take the time to help it is very much appericated!!!!
Tobie Miller
Mom to Jessa
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New research building at Cincinnati Children's Hospital - click for link
bringing families affected by EGID together
upcoming events
- *3rd week of May 2010 - National Eosinophil Awareness Week
- *CSRA EOS Chef Challenge - date TBD
Posts
Wall of tissue (and DNA)
New research building at Cincinnati Children's Hospital - click for link
Links for Local Places
EGID information
- American Partnership for Eosinophilic Disorders
- International Eosinophil Society
- CURED
- eosinophilgastro Yahoo! group
- Cincinnati Center for Eosinophilic Disorders
- Children's Hospital of Philadelphia - Center for Peds Eos Disorders
- Denver Children's Hospital - EGID
- Rady Children's Hospital San Diego - EGID Clinic
- Kids With Food Allergies - helpful tips, recipes, etc
3 comments:
wow! That sounds pretty cool! If any of you guys would like to share, maybe we could paost our local ones on the blog. What do you think?
Katy
that sounds good. Is anyone interested in a group picture for this? I could see if we have enough time to submit it if we take a picture at our next meeting. Avery submitted a drawing. I'll post it.
I think a group photo would be great! I've just spoken to a newly diagnosed family and heard the same relief when she found out that 'they are not alone' as I have heard so many others who face EoE say. A picture of our local group is another way to put a face on this condition.
I'd be happy to take it, if you guys want to do it.
- K
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