Thursday, December 18, 2008

support groups/hospital calendars

I looked on MCG Health's Community Calendar and saw a number to call for more information about support groups:  706-721-CARE (2273).

University has a listing of support groups with good information about each (location, cost, goal, etc.), however, each support group looks like it has a tie back to University.  There is a general "contact us" form so I'm going to go ahead and ask about if they would advertise for us. 

Doctor's Hospital has a short list of support groups and easily accessible pages for health conditions.  The pages for specific conditions have links to resources and other organizations.  Oddly enough, nothing for EGID...8).  For contact it looks like the general form is the only way through the website.  

Trinity's website isn't working right now.....

Maybe the thing to do would be to use the 'contact us' forms to get the mailing address for their community event organizers and ask if they would advertise the support group.  I'm thinking that MCG is the best place to advertise, but want to cover all the bases.





Monday, December 1, 2008

Speaker topics - input?

As we discussed briefly at the last CSRA Eos meeting, we can invite "expert" speakers to talk to our group (and other EoE families). The topics covered can vary, depending on what you are interested in hearing. So far, the following have been suggested/mentioned as potential topics:

Dietary issues - more info regarding food elimination, etc. from our Pediatric dietician

Alternate flours - how to use them successfully in recipes

I am happy to seek out speakers, but I want to cover topics that are interesting/helpful to you. For example, what specific questions would you have for our dietician speaker? (ways to inrease calories in a restricted diet? new ideas for 'fun' food substitutions?) Or, would you rather hear more about medications? how they work or why certain meds are chosen? Just think about what issues/concerns your family faces and let me know!

What topics are you interested in?